The current NHS Digital (NHSD) extract of GP data for Research purposes (known as the GPDPR) has been delayed due to NHSD wishing to review the way in which this data will be collected, to conduct more public involvement and information about the plans and change the way in which patients can opt out of the extract of their GP data.
Currently the only way to opt out is to complete a Type 1 opt out form and return this to the practice by the 1st September. However, this extract will not be taken until the NHSD have changed the way it will take the data and respect the patient’s choice for using their data. NHSD are introducing the following changes to the opt-out process which will mean that patients will be able to change their opt-out status at any time:-
- Patients do not need to register a Type 1 opt-out by 1st September to ensure their GP data will not be uploaded.
- NHS Digital will create the technical means to allow GP data that has previously been uploaded to the system via the GPDPR collection to be deleted when someone registers a Type 1 opt-out.
- The plan to retire Type 1 opt-outs will be deferred for at least 12 months while we get the new arrangements up and running and will not be implemented without consultation with the RCGP, the BMA and the National Data Guardian.
This means that you can opt out at any time in the future and NHSD will delete data that they already have taken for research purposes, the deadline of the 01/09/2021 has been delayed until a new system of opt-out is developed. Hopefully, this will be a simple centralised approach via the NHS app or NHS website to avoid paper form and administration work for your GP.
We will update you when we know more about the NHSD plans to change how you can control who has access to your data.
To summarise –
WE ARE UNABLE TO PROCESS OPT-OUT PREFERENCES AT PRACTICE LEVEL. NHS DIGITAL ARE DEVELOPING A WAY BY WHICH PATIENTS CAN OPT IN AND OUT WHENEVER THEY WISH, AND UNTIL THE METHOD TO DO THIS HAS BEEN AGREED, NO OPT OUT PREFERENCES WILL BE PROCESSED BY CHIPPING NORTON HEALTH CENTRE. NHS DIGITAL WILL NOT BE EXTRACTING OPT-OUT DATA ENTERED ON YOUR HEALTH RECORD, THEY WILL RE-ISSUE GUIDANCE ABOUT HOW TO OPT-OUT WHEN A MORE TECHNICAL MEANS HAS BEEN DEVELOPED.
National Data Opt-Outs
Type 1 opt-outs
You can also tell your GP practice if you do not want your confidential patient information held in your GP medical record to be used for purposes other than your individual care. This is commonly called a type 1 opt-out. This opt-out request can only be recorded by your GP practice.